A New Squint
A few weeks prior to his diagnosis Xavi’s left eye had started to “turn in”. It was extremely subtle and for a couple of weeks we brushed it off, thinking we were imagining it. Then his nursery worker mentioned it and that prompted me to immediately book a GP appointment.
The GP explained that squints can be common in young children and referred him to see an ophthalmologist. After waiting a few weeks for an appointment I contacted the eye department to be told there was a four month waiting list. I had read that a sudden squint can be cause for concern and retinoblastoma (on the GKCCT awareness cards) was in the back of my mind as something I wanted to rule out.
A year later and Xavi’s tumour is now considered ‘stable’ and last month he had his first EUA where the decision was made not to carry out laser. This is another step in the right direction because it means that they will hopefully start to space out his EUAs which are currently every four weeks. Xavi is back at preschool now and we hardly ever focus on retinoblastoma between his appointments. We can finally make plans, see friends again and even treat ourselves to a holiday! We’ve come so far in a year, and we’re incredibly proud of our brave boy.