Useful resources and support
The CCLG offers a range of extremely useful information resources and leaflets that provide information for parents and General Practitioners on the diagnosis and treatment of children with cancer
They provide financial, emotional and practical support. Speak to staff on your child's ward and they will refer you to your local Clic team.
The Teenage Cancer Trust
For teenagers and their families, providing emotional and practical support.
The Rainbow Trust
This supports life limited or life threatened children and their families to include children undergoing treatment for cancer.
Online Support Groups
Rhabdoid families support group with the Grace Kelly Childhood Cancer Trust
This is an online support group for parents and carers of children diagnosed with rhabdoid tumours. This group also welcomes parents of children with very rare or undiagnosed solid tissue tumours for whom alternative support groups do not exist.
My Kid has Cancer
This is a Facebook support group, providing easily accessible online friendship and support to parents of children with cancer. Please note this group is a closed group and only parents or primary carers of a child with cancer are able to join.
Other groups available:
Grandparents of children with cancer support group.
This is a closed Facebook support group for grandparents of children with cancer.
There are also many excellent smaller childhood cancer charities that operate in local areas to provide emotional and practical support to the families of children undergoing treatment.
For bereaved families:
This charity provides a wealth of information and sources of support for families after the loss of a child.
My Kid has Cancer - Bereaved parents
This is a closed Facebook support group for parents following the death of their child from cancer. Only parents, or primary carers of the deceased child, or young person are able to join.
The Compassionate Friends
Help and support after the death of a child.
A Child of Mine
Help and support for bereaved parents. It provides information and guidance on all aspects of losing a child.
Whiteleys Retreat is a charity which offers free respite for families who have a a child or young person living with cancer or other life altering illnesses. They also offer this respite for children/ young people who are in remission of up to 3 years and bereavement breatks. Families can contact them directly by emailing [email protected] to obtain a booking form or for further information. Alternatively, visit www.whiteleysretreat.com and complete the Contact Us/Booking section