Palliative care

Palliative care

• A summary of NICE guidance for end of life care for children and young people with life-limiting conditions: NICE NG61

• Childhood cancer end of life care: Information for General Practitioners - publication produced by the Grace Kelly Ladybird Trust and the Children's Cancer and Leukaemia Group.

End of life and bereavement resources

Royal College of General Practice E-Learning module on Child and Infant Loss and Bereavement. Kelly J, 2017.

This is an extrememely useful resource giving practical ideas to General Practitioners to help support families through all types of child and infant loss. It looks at practical ways to help families in the immediate aftermath, stages of grief, the importance of practical and emotional support and how to recognise when grief becomes 'complicated.'

 

Further Information and guidelines for Professionals

• NICE 2016, NG 61. End of life care for infants, children and young people with life limiting conditions planning and management.

• BNF for Children; BMJ Group, 2016 – Prescribing in palliative care. This is a useful section for palliative care in children.

• Together for Short Lives: Basic Symptom Control in Paediatric Palliative Care Free Download edition 9.5

• Together for Short Lives. End of life planning prompt sheets, 2012

 

​​Useful resources and publications for life-limited children and for families following bereavement:

• Children’s Cancer and Leukaemia Group; Facing the Death of your Child, 2015.

• ​Together for Short lives

• ​The Compassionate friends

• A Child of Mine