570,000 families reached
The distribution of over 570,000 awareness cards for parents and health professionals is teaching the signs and symptoms of childhood cancer.
The Grace Kelly Childhood Cancer Trust is funding the insertion of this card into the PCHR (Infant Red Book given to the parents of newborn babies) in many regions.
Funding vital research
Research into childhood solid tumours is very underfunded.
Currently the GKCCT is funding two research programmes into rhabdoid and other rare solid tumours to help search for better and kinder treatments for children with these aggressive tumours. In addition we are working with other two other major charities to fund a join research programme into the signs and symptoms of childhood cancer to work towards the earlier diagnosis in children affected.
Financial support following the death of a child
In the last year, 8 children from the UK have passed away within the GKCCT support group.
GKCCT provide support grants to the families affected to help towards funeral and other costs at this devastating time.
Providing educational resources
The Grace Kelly Childhood Cancer Trust has produced educational resources for parents and professionals to raise awareness of the signs and symptoms of childhood cancer.
We have released a number of publications for the parents of children diagnosed with cancer including rhaboid tumours, and resources and guidance for General Practioners to help with the diagnosis, treatment and long term care of children with cancer in the community.
Support for families
Support is crucial for families affected by childhood cancer. The GKCCT runs an online support group for families from the UK and internationally for those affected by rhabdoid and other rare aggressive solid tissue tumours. This provides a much needed, "Beacon of light in a terrible storm."