Charity news / by Jennifer Kelly
Fri, 09/13/2019 - 10:00

Hand in Hand for Oscar


Today, we are launching a fundraising appeal to help save the life of Oscar Saxelby-Lee from Worcestershire. Oscar was diagnosed in December 2018 with high risk T-cell Acute Lymphoblastic Leukaemia. Since then he has spent 8 months in hospital undergoing numerous rounds intense chemotherapy to try and reach remission. 

His mother Olivia said,

"We were so grateful earlier this year when thousands of people across the globe signed up to become stem cell donors in the faith that Oscar would find a donor and we finally got the go ahead with a 10/10 match. After further chemotherapy, full body radiotherapy and three months of gruelling recovery post-transplant, we were told the devastating news that Oscar’s leukaemia is back. Once again, a massive blow to us all as a family, but especially our sweet little boy who finally started to feel like he was getting his childhood life back.
We have been told by specialists that it is unlikely that there are any curative treatment options left for Oscar that are available on the NHS. At present, children with B-cell Acute Lymphoblastic Leukaemia in Oscar's position are able to undergo CAR-T therapy here in the UK.
Unfortunately, there is no such therapy available for children with T-cell Acute Lymphoblastic Leukaemia. Oscar's care team are currently looking at the possibility of Oscar receiving this treatment as part of a trial. They are also looking at the possibility of a second bone marrow transplant that also most likely need to take place outside of the NHS.
Currently, the NHS can typically only offer a second transplant to patients twelve months on from their first transplant. With the nature of Oscar’s disease, we simply may not have that long to keep his disease at bay....
Having been told options are very limited from the beginning of this journey, we have never lost hope, with Oscar’s strength and determination throughout. This is why we have made the decision to give our warrior the best shot at a lasting cure that we can. This is the least he deserves after such a torturous battle.
So, we ask you to join Oscar’s army in making his dreams come true and saving his life.
The information we have received from our care team and the trial in question indicate that we will need to raise in the region of £500,000 to make this possible. This will be updated once we have a formal amount confirmed. This huge amount is the price we have been given to give our boy a chance at life. If you are able to help in any way, we would be so grateful."

Oscar's parents have decided to fundraise through the Grace Kelly Childhood Cancer Trust so we can help and support them through this next hurdle. Oscar's funds will be ring-fenced for his use (these funds are separate to our general charity funds so the general work of the trust will not be affected).

Any funds not used to help Oscar with his treatment will be used by the charity to fund research into childhood cancers like Oscar's to look for better and kinder treatments for children. 

To donate to give Oscar the treatment he needs, please see his appeal page here.